We recently caught up with hospice consultant Sue Lyn Schramm, who led a preconference session on hospice facilities at the National Hospice and Palliative Care Organization Management and Leadership Conference in April and a similar one last year, described here, which explored the precipitous drop in utilization percentages for hospice general inpatient (GIP) care that has left many hospices with facilities scrambling to keep beds full.
“All of the challenges we talked about a year ago still apply,” Schramm said in summarizing this year’s NHPCO precon. “GIP days are lower, patients are more acute, and balancing the bottom line is difficult.” But the tone of the meeting was hopeful, she added. “There are lots of things people can do to manage their units, and I hope I gave them practical tips to use. Answers vary widely depending on your own unique local circumstances. I did not have a sense that it was a funeral for the Hospice House model. We’re in a very interesting time given the demographic trends. Demand for inpatient and residential hospice care can only go up.”
Schramm says some of her clients have waiting lists for their hospice facilities while others are looking to build or expand for competitive reasons or because their hospitals are asking for it. But the terminology is another challenge for the field. “Is Hospice House or home too warm and fuzzy a name to describe the actual experience of caring for acutely ill hospice patients referred for GIP (and qualifying for GIP-level coverage)? I think Hospice Houses can sell themselves short.”
But what is the right terminology for a hospice organization trying to provide residential-level care or a mix of residential and GIP? What do you think? (Read more about what Schramm has to say here.)
Larry Beresford, Editor & Publisher
The development of Hospice Houses offering a haven for homeless people who are also facing a serious or terminal illness – helping them get off the street at this difficult time of life – is starting to spread. I reported on this model – and the challenges and rewards of trying to create a safe hospice home for the homeless — in the newsletter of the Hospice House Network (www.hospicehouse.us) and in a 2017 post at the Lancet’s United States of Health U.S. blog page.
Recent news stories have profiled the spread of this model, such as Grace House Akron in Ohio, a nonprofit organization trying to establish a home for dying patients who don’t have a home or caregivers at the end of their lives. Modeled on a similar charity called Malachi House in Cleveland, its developers concluded that building a new six-bed structure from scratch would cost less than rehabbing an existing structure. They held a launch event May 3 at the Akron Civic Theater.
Another Hospice House for the homeless, Journey Home Hospice, opened April 30 in Toronto, Ontario, as a partnership of agencies including Hospice Toronto. They started with four beds at a pilot site but aim to create a 10-bed hospice in the next two years as an extension of home-based palliative care. In Sacramento, Calif., Joshua’s House is being developed by a group led by a retired associate professor in the UC Davis School of Medicine in memory of her grandson, who died on the street in Nebraska in 2014. And in Salt Lake City, the Inn Between, one of the earliest Hospice Houses for the homeless, is moving to a new larger location and hopes eventually to have 75 beds.
These types of programs are born out of the belief that no one should die alone or on the street. They typically work with existing hospice agencies with established home-based care teams that bring a similar level of interdisciplinary hospice services into the Hospice House. With all of the discussion nationally about homelessness and how to address it, Hospice Houses for the homeless are an important addition to the continuum of services in society’s safety net.
Larry Beresford, Editor and Publisher
Greetings and welcome to the new blog of the Hospice House Network, which is a coalition of hospice professionals that operate, are planning or dream of building a Hospice House facility to supplement their home-based continuum of services with a specialized setting and level of care for those hospice patients who cannot be in their own homes.
You can read more about the Hospice House concept and access pictures and other information by visiting the webpage at www.hospicehouse.us. We also operate a Listserv for member hospices to exchange questions and perspectives on operating a hospice unit or facility – whether general inpatient, residential or a combination of care levels. We also have an archive of newsletters full of pictures, stories and information. But increasingly we find that the newsletter medium is a slow-moving, hard-to-access method for bringing Hospice House advocates together.
That is why we have established this blog as a more timely way to share items about the development of the Hospice House concept. Please bookmark this page and let us know what you think.
Larry Beresford, Editor and Publisher